Shandy and Vodka and Coke

 

Shandy and Vodka and Coke, 2016

 

Name: Leigh H.

Age: 21

Tell me about the person who died:

On Sunday, September 19th, 2004, at the age of ten, I lost my father to terminal lung cancer. I remember being pulled out of my grade five class to find out that we had to make a decision whether to "pull the plug" by Sunday night. I was not present for the decision, but I was informed on Sunday evening that my family decided to take my father off of life support upon the doctor's advisement. 

Flash forward nine years to early morning on Monday, March 4th, 2013; I was 18. I had spent the previous night with my mother on the palliative care unit at the hospital, just waiting for the gurgling to cease. She was steadily declining in health, since she could no longer swallow food or water. The doctor informed us that she had about a week left to live. But two short days after we were told this, the moment I left her to go home and shower, my mum passed. 

Both losses were equally significant, but struck me in entirely different ways. I’ve attributed the differences to the ages at which I lost them. I had more time with my Mum, and we had to fast forward through time as if we were running against it. I went from rebelling against her, always up against a wall, to taking care of her in her darkest days. The times she wept because I needed to be there for her and it was painful for her. The things I didn’t expect to hear until I was at least forty. Whereas with my Dad, it’s not that it didn’t hurt, it’s that I didn’t know. I was too young to comprehend what was going on around me, and I was kept in the dark because of my age. To me, the deaths are united by a feeling of incomprehensible loss, because when I lost my mum, I lost my father all over again. My world fell apart with an unavoidable immediacy.

What was your experience of grief like after your loss? How did it change over time?

Something that I’ve noticed about grief is that it has no boundaries whatsoever. It will invade every crevice of your mind, bones, heart, and spirit. It is a circular staircase, where you climb each stage of grief and then end up at the bottom stair again, because you never truly stop grieving. It is an ongoing process.

My grief has exacerbated my everyday anxiety and “depression,” whatever that constitutes. But what is grief if not the experience of loss? What is anxiety if not the fear of losing something? What is “depression” if not feeling as though you’ve lost your vitality, your source of content, your entirety, and ultimately your soul? Few understand this, and if this can’t be understood, how can my grief progress? How can I climb the stairs without falling on each step? 

I’ve been made very well aware that the losses I’ve experienced are rare for someone my age. It’s not that I desire for anyone to comprehend my loss in the same way—I would never wish that upon anyone. I do desire that my grief be understood, and a few years ago, I would have never expressed this. But recently, I have found contentment in sharing my grief with others. How else could I become comfortable with this experience if I didn’t speak about it? The stage that I have reached is “acceptance”–the top stair–but I will end up on the bottom stair again soon. It’s a natural process that is marginalized and dismissed, but in actuality, bereavement is essential to our well-being.

If you had to describe your grief as a literal landscape, what would it look like and feel like at different points since your loss?

Encompassing darkness, overwhelming confusion, skin crawling, desperation, melancholic, discontent, anger, red, black holes, tunnel vision, irreconcilable rage, tingling sensations, lost/sinking/falling, dizzy, light, hopeful, angels, emptiness.

Tell me about an object that reminds you of the person who died, and why?

We used to all gather in our basement for family time. I remember vividly the image of them at the basement bar—a shandy (beer and ginger ale) filled to the brim for my Daddy, in a distinct glass cup he had. He would be behind the bar pouring my mum a vodka and coke, or a Baileys, preparing for the evening. We would listen to music—they enjoyed American Graffiti and other oldies too. “Distant Drums” by Jim Reeves always made my mum tear up, as it reminded her of my dad after he passed. We would have ice cream, chips, and drinks. And play darts. My childhood, encapsulated.

Did anything surprise you about your experience with grief?

The most surprising thing was when my grief officially settled with me. When I was younger, it was difficult for me to wrap my head around everything. But I distinctly remember a point where I felt guilty for continuing on without my dad as I was a kid. Guilty for carrying on like everything was fine. And this feeling only grew after I lost my mum. It truly is life-shattering to lose your parents, and to pretend to be brave at times when you feel the most vulnerable. Grief allowed me to realize that it isn’t even the big things anymore; it’s not the holidays or the birthdays, it’s the little things. It’s my inability to run to my mother to share with her my day, how I’m doing in school, to gossip or cry on her shoulder. Or to share with my father a boy that I wish for him to meet, or to have him mold my everyday actions—and not just to have him influence me, but to hear him say what I’ve done right and wrong. To have that sink in.

How did the people in your life support you in your grief? What was helpful? What was frustrating?

The most frustrating thing for me with grief is that there is a skewed and widespread conception of grief being disordered if it goes beyond, stereotypically, six months. Some jobs only allow a few days off for grieving. How is this humanly possible? At what point did we tear death away from compassion and humanity? At what point did grief become something we get over, or move on from, because someone is still “with us” or “would be proud” of us?

Another substantial frustration for me is that people often don’t understand the sensitivity of the topic. For instance, I understand that some people do not get along with their parents. But when people complain to me for hours on end about a parent who, for the most part, is genuinely kind and treats them well? I become enraged, jealous, and selfish. This is the worst side of grief.

How did people who were grieving the same person respond to the death compared to you? What similarities and differences did you notice?

Something that I have noticed is that people try to compare grief experiences, but each experience is unique. The meaning you pull from it is simply your own. Even the role of the individual in your life contributes to the meaning you gather from their death. I found that with my mum, I couldn’t speak to her about the loss of my dad, because it was her husband. It wasn’t until she lost her dad that she truly understood. But the intimate love she had with my father formed her perspective, and I can’t disregard that. Similarly, these are my parents, and no one will understand the depths of my grief. However, they may relate to my grief in some ways, just as my mother did when she lost her father.

How did your private grieving relate to your public mourning?

The funerals felt like bombardments. I had chest pains. It felt like everyone and their mother was there, but the most important people were notably missing. 

I received comfort from people for about three weeks after the funeral. People ask you how you are, if you’re holding up okay, how your relationships are, and offer assistance. But when I really needed it, a year later—when I realized how difficult it really is to carry on—it wasn’t there. The mourning I experience now occurs privately since I’m past that “acceptable” time frame for grief.

Was there anything about your cultural or religious background that affected the grieving process for you?

I asked my mother to connect with me in any medium she could, to reassure me. She has visited me in dreams, and I’ve felt her energy. She has visited me more than my dad, and I believe this is because I was so young when he passed and he kept me in the dark with his illness. I was his little girl, and he didn’t want me hurt. He still doesn’t, and while he’s come a few times with my mum, I know this is because of her spirit.

Were there any personal or public rituals or structures that helped you in your grief?: 

There was a Christmas tree ceremony at Durham Hospice. Putting an ornament on the tree in memory of my parents, I felt as if they were there. I also wear a necklace and a claddagh ring my father gave to my mum, as it makes me feel connected to them.

How did your loss and your grief change you?

My grief made me appreciate life for all that it is. I’ve used my parents’ strength to bring me to where I am, and understand my weaknesses as acceptable in my journey—a journey I begin every day, in a physical sense, without two of the most important people in my life. They both passed young, and recalling all of my memories with them—good or bad—makes me value the time I have with them, and with anyone. I strive to believe that everything happens for a reason, and that people come in and out of your life for a reason, too.


This post is part of Grief Landscapes, an evolving art project documenting the unique terrain of people’s grief. Participants share an experience with bereavement, and I photograph an object that evokes the person who died, transforming it into an abstract landscape inspired by the story. 

Music Box

 

Music Box, 2016

 

Name:  Julie Fitzpatrick

Age: 38

Tell me about the person who died:

Elizabeth was my first friend. Literally. My folks were driving me home from the hospital after I was born in New Haven, Connecticut, and stopped off at the Rigneys’ house on Three Corners Circle Road so that we all could meet. Elizabeth was just over a year old at the time.

I can't remember not knowing her. We carved pumpkins each Halloween, went to church together, went to the beach together, were always at each other's houses, went to Friendly’s together. Elizabeth was in many ways my opposite. She was on time; I was late. She was neat; I was messy. She was clear and direct, while I was often indecisive and uncertain. Elizabeth knew who she was from day one, it seemed, and I only knew what I wanted for lunch. That was a major crossover point for us: lunch. Food. We'd gab for hours over ketchup and fries, or ketchup and microwaved melted grilled cheese. We’d pour a mountain of the red sauce into the center of our shared plate and then dip away.

Elizabeth said "what" all the time since she was deaf and I was not. I filled her in on what was happening around us in the hearing world, and she kept up by lip-reading with remarkable accuracy. She spoke in a loud funny accent and often beeped because her hearing aid needed adjusting. “Elizabeth, you’re beeping,” I’d say, and she’d nod and raise her arm to twist the knobs at the top of her hearing aids and then she’d suddenly go quiet, the whistling kettle sound silenced. I remember someone asking me if I minded filling her in all the time, and I didn’t at all. Elizabeth grounded me. In many ways being with her gave me a sense of purpose. I was her conduit to the hearing world and she made me feel like I had a place in the world in general. Elizabeth was a straight shooter, very frank. This was refreshing for me because my family was incessantly polite and politically correct. I knew where I stood with her. In many ways I was the deaf one.

Elizabeth had a host of physical problems that really caught up with her in high school: she had a kidney transplant freshman year and then struggled with heart problems in the next few years; eventually her lungs stopped functioning. She died the day after my birthday in 1999.

What was your experience of grief like after your loss? How did it change over time?

I have to say I was pretty numb for a long time. I was in college when Elizabeth died and I always thought she'd just be there. She had been such a fixture in my life. It was like she had a sensor on her car for when I returned to our hometown. Moments after opening the front door, I'd hear her car in the driveway. It's Elizabeth - she knows I'm home, I'd think. And lo and behold, there she’d be. After she died, it took me a long time to stop checking the driveway for her car. I’m home, I wanted to tell her. Come over. Drive on up. I’m here.

I don't have that many girlfriends with whom I am still close; I have many friends, but no one as close to me as Elizabeth was. I was so comfortable with her, so seen and understood. Elizabeth was great at giving me basic instructions throughout our childhoods: do this, Julie; do that; clean your comb, put on lotion daily, read, keep things tidy, write letters and save your pen pals’ notes in stacks tied with ribbon. It was simple wisdom that Elizabeth knew innately, but it helped me. 

My folks were pretty much done with teaching kids how to do things. I was my mother’s sixth child, though a brother had died before I was born, and I think they just trusted I would figure things out. In many ways, Elizabeth helped me to do that. Her mother often told me that Elizabeth looked to me for an entry into the hearing world, and she’d tell me what a good friend I was to her, but I don’t think that’s the full story: any help I gave her, she returned to me tenfold. I didn’t get the chance to tell her that–I mean I think she knew but I wish I could just sit with her over some melted cheese and thank her.

If you had to describe your grief as a literal landscape, what would it look like and feel like?

A windswept field with cattails blowing in the marsh and a few wildflowers popping up here and there. Elizabeth loved Anne of Green Gables and Prince Edward Island and I love Irish countrysides so in my mind, my grief picture is a blend of those two scenes: harsh and beautiful, with a sense of emptiness and loss.

Tell me about an object that reminds you of the person who died, and why?

There was a shelf above her bed that ran the length of her wall, and on it, Elizabeth had a collection of music boxes neatly lined up one after the other. There was a trolley and a ballerina and a circular one–different compact boxes with lids and cranks. She’d turn the crank and watch them spin. Of course she couldn’t hear them but perhaps she sensed the vibrations. I’m not sure what it was about them but their delicate designs fascinated her. She dusted them and treasured her collection.

Did anything surprise you about your experience with grief?

Just that it continues. I guess love is like that. What also surprises me is that it still surprises me that Elizabeth is no longer alive. How can that be? Someone as bright and funny and opinionated and detail-oriented as Elizabeth? She’s not still here? She’s not in the kitchen in the house her parents no longer inhabit, putting marshmallows in her hot chocolate and writing notes on the margins of her books in pencil so that she’ll remember everything?

At the time of Elizabeth’s death, I was relieved for her that she was no longer yellow with jaundice and could breathe comfortably in heaven–her body had gone through so much and it was tough for her to constantly visit doctors. But I was numb to the reality of her absence. I shoved those thoughts to the back of my mind and carried on with my busy collegiate things.

Now, the Friendly’s where we used to ketchup-dip has morphed into a bland cafe and I can’t believe we haven’t tested their fries and rated them against their predecessor’s. I’d like to sit across from her there, or anywhere, and talk to her about how my marriage has broken up and how I have a little boy who loves to do the alphabet in sign language and that I am rethinking being an actor and what does she do when she gets down? Can she remind me? She was a good friend to me as a child and I wonder what we would be like as adults. I would have brought her to the recent Broadway production of “Spring Awakening” with deaf and hearing actors lighting up the stage. I would bring her to a church I’ve found with a deaf community and an interpreter where we could listen to the priest together. I want to hear about how she is as a woman–what kind of work she is no doubt excelling at, and if her heart still beats for Jeff Marcino.

How did the people in your life support you in your grief? What was helpful? What was frustrating? 

I think my parents said the right things, but they were pretty wrapped up in their own grieving–my brother was hospitalized for mental illness during the same time and my sister had gotten sick with breast cancer. It’s like we were separate orbiting agony balls that couldn’t align with one another. We couldn’t see past our own atmospheres.

How did people who were grieving the same person respond to the death compared to you? What similarities and differences did you notice? 

I was kind of shocked by how her family members seemed to shut down about her passing. Perhaps they were too sad to fathom talking about her or staying in touch, but her older brothers seemed particularly reserved when she died. I ended up writing a performance piece about my friendship with Elizabeth several years after her death, and after her family saw the show, one of her brother’s wives told me, “He never talks about Elizabeth. This was good for him. Thank you.”

Was there anything about your cultural or religious background that affected the grieving process for you? 

Not really. I pray now and I prayed then. I suppose now I think the line between here and not-here is thinner though, so I have a sense of her presence even to this day and for that I am grateful.

Were there any personal or public rituals or structures that helped you in your grief? 

I call her mom every year on the 10th of December, her birthday. Somehow I often miss the 22nd, her death day. I tell myself I will call Sue then too, but I often don’t. The day Elizabeth was born feels so special and the day she died, so confusing, sad and ugly. I call Sue and we talk and catch up and this year she said, “Oh, you called. All of my kids called.”

How did your loss and your grief change you?

I have gone on to study sign language and have been involved with two productions that include signing and deafness as themes with deaf and hearing characters and actors. I feel so at home when I hear Elizabeth in the deaf voices around me or when I experience their candor. I am learning that is a common trait amongst deaf people: honesty and directness. And devotion and loyalty and good humor and incredible expressivity. Or maybe I am just projecting her on all of them. Probably.

In many ways I think I’ve shortchanged myself in the grief department. I am still pretty sad about Elizabeth and haven’t given myself a whole lot of room to feel that sadness. I am good at compartmentalizing and forcing myself to show up for life even when I probably ought to take a pause. 

Elizabeth really cared about me and took care of me in many ways. I think that sweetness of her in my life is still changing me–she continues to move me and sometimes that takes the form of sadness and sometimes that looks like delight. Elizabeth never spent time dwelling on her waist size or her hair style. She was staunchly who she was and I found that calming and kind to be around. We championed each other. So if my grief changed me, it made me sad, and also very glad for having known her.

Julie Fitzpatrick is a mother, actress, writer, and car salesperson-in-training based out of New York City. She grew up in Guilford, CT near a family car dealership where she has recently been working and enjoying herself learning about cars and the business world. She is grateful for this opportunity to share a slice of her friendship with Elizabeth Rigney in Mindy Stricke's Grief Landscapes Series and she would welcome hearing from readers at julie@juliefitzpatrick.com.


This post is part of Grief Landscapes, an evolving art project documenting the unique terrain of people’s grief. Participants share an experience with bereavement, and I photograph an object that evokes the person who died, transforming it into an abstract landscape inspired by the story. 

Green Tabasco Sauce

 

Green Tabasco Sauce, 2016

 

Name: Suzanne Galante

Age: 42

Tell me about the person who died: 

My 11-year-old son Riley died on October 20, 2014. He didn't recover from his sixth heart operation. His fifth surgery was seven years earlier, so we had almost seven years of nearly normal life. Or as normal as you can have when you're raising a son with half a heart. You see, my oldest son was born with a complex heart defect and a chest full of organs that landed as if they’d been jumbled in a bingo machine. His first surgery was when he was six days old. But more than his heart, I want to tell everyone about his quick plays at second base during his seven years of Little League, about the short stories and poems he wrote, about his love of maps and of his siblings, about his interest in penguins, and about his desire to open a restaurant one day. We used to joke it would be called “Riley’s Salads and Fried Things.” From the time he was just two years old he loved salad and caprese sandwiches. He loved his Italian heritage and enjoyed making his family bruschetta and croutons; he ate cloves of raw garlic. I can remember sending a little three-year-old boy into the backyard to pick handfuls of basil for batches of homemade pesto that would be spread onto thick slices of crusty bread.

There was a sweetness to our relationship, a closeness that is different from the closeness I have with my other son. It was a physical relationship with him, always sitting on my lap and holding my hand (even at his middle school), and offering up hugs in front of his friends, even when his friends were shy about hugging their moms in public. He was the best thing that ever happened to me. Getting to be his mom was the greatest gift.

What was your experience of grief like after your loss? How did it change over time? 

In the beginning, it was not breathing, not getting out of bed, disbelief. The world was so confusing, like all the walls and streets and buildings that I saw and passed on a daily basis were nothing but a mirage. People were still grocery shopping and going to work and school and it made no sense. And I felt like I had no purpose because I had spent the previous eleven-and-a-half years protecting him. Without him, I lost my identity. I had no idea who I was without him.

I also remember feeling like a rat inside a wooden maze. It felt as though everyone was looking down at me from the maze walls, scrutinizing my every move. I felt they were thinking, "Why did she turn left? Didn’t she know she was supposed to turn right?" I felt as if they knew what I should be doing as I fumbled along in grief. I couldn't help but wonder if the process of grief was some kind of riddle that each of us has to decipher.

For all of Riley's life, through years of photos, I had long hair. Even when a hat covered my hairline or glasses outlined my eyes, my long strands followed me. The baby grew into the toddler, who became the Little Leaguer and viola player; the long hair was consistent. Through long hospitalizations, holidays, separation and divorce, it was there. Through new love and step-family and pets, it was there. As his heart slowed and squeezed for the last time, it was there. During an emotional tide about four months after Riley died, I retrieved the scissors from the kitchen knife block. Clasping a fistful of hair, I chopped through one side, then the other. Again and again, I cut and sawed and chopped until any visual sign of that happy woman in all the photographs was gone. Afterward, like a mound of severed limbs, a heap of hair laid on the countertop. I stared into my own eyes again. Without hair to hide behind, the dark rings from exhaustion and grief stood prominently above my cheekbones. While I didn’t recognize the short-haired stranger, she was scraggly, ugly, and looked how I felt on the inside. 

And I am still lost, but in a different way. I am lost now because I cannot imagine a time when I will want to be at a party or at a place where anyone is celebrating anything. It feels impossible. I don't know how to interact with humans who have healthy, living children. I have shut down most of my friendships and spend most of my time alone. I'm largely terrified of everyone. I'm also confused by all of them: their smiles, laughter, or their annoyance at traffic or the wrong latte at Starbucks. To be fair, I imagine people's lives are far more complex than what I catch a glimpse of as I blast through my kid's school with my head down. We share the same roads and schools and grocery stores and oxygen supply, yet it feels as if we exist in parallel worlds. Most of the time I want to be invisible, yet having people ignore me is a different kind of trauma. They're damned if they do, damned if they don't. I don't make the rules–I’m just stuck in this miserable game of trying to figure out how to exist among the living and having no clue about how to do it.

If you had to describe your grief as a literal landscape, what would it look like and feel like at different points since your loss?

Imagine petting your dog through rubber gloves. Imagine kissing through a sheet of plastic wrap. Imagine showering wrapped in a rain poncho. Imagine trying to smell freshly baked cookies with a nose clip. Imagine listening to your lover while wearing earplugs. Most of the day, I’m wrapped in this numbness. My world is a spectrum of gray—colors covered in soot. Then grief throws me down and for that period, I feel everything. All the numbness disappears while I’m overpowered by a current, a rawness, the force of every ounce of grief bound together like a bus that rushes toward me at 110 miles an hour. It flattens me, leaving me breathless and weak and feeling even more broken. When it passes, numbness returns for another moment or few hours or days.

Tell me about an object that reminds you of the person who died, and why? 

His Tabasco sauce caddy was the best gift he ever received! We used to joke that he would end up taking it with him to college. Green Tabasco has always been his favorite, but he would dabble with original and garlic and Buffalo-style. At his 10th birthday, the party favor was little bottles of Tabasco. We think one of his medicines dulled his taste buds, which is why he liked strong flavors. He put hot sauce on everything–even graham crackers. Whenever my son or my two stepchildren draw pictures about Riley, they always contain a bottle of green Tabasco.

How did the people in your life support you in your grief? What was helpful? What was frustrating?

There was food, a long succession of meals to feed us. Children from Riley's school wrote #TeamRiley on their arms in solidarity with him while he was in the hospital. They wrote notes to Riley and our family on heart-shaped pieces of paper. They arrived at the memorial and after we were done with them there, I laminated them and hung them on my front door and front windows. One child made #TeamRiley wristbands and sold them to raise money for Camp Taylor, a free summer camp for kids with heart defects. Other children organized a bake sale for Camp Taylor and the Children's Heart Foundation, which funds research for congenital heart defects. Another classmate organized a 5k run which eventually included 200 people. 

We have a video of Riley as a little kid singing Owl City’s “Fireflies." We played it at his memorial. After his death, the school played it on the loudspeaker on his birthday, and the orchestra chose to play it at the Christmas concert. On the first anniversary of his death, we had a handprint memorial. Our garage door was painted with hundreds of classmates' handprints. It was helpful because seeing all of those people come over and stand in a long line to wait to participate showed me that people have not forgotten him. I get notes from people every now and again telling me how they have thought of him recently. One example would be when a classmate stands up in her synagogue and says Riley's name when she's asked who she is mourning. Seeing how people are honoring and remembering him is healing. One of my biggest fears is that people will forget him. 

What’s frustrating is communicating. As a bereaved mother, I have found conversations with acquaintances to be painful, not because I am asked to speak about my son, but because the weight of the conversation is so often plunked down on my wounded heart with good, but flawed, intention. "How are you?" or even Sheryl Sandberg’s modified "How are you today?" sounds innocent enough. But in order to answer, I must access myself for this other person, in what ultimately is a passing moment in their daily routine. To me, it is so much more as I frantically scan myself in an attempt to sum up what it is like to live today without my son for a near-stranger. What would be better? "I'm thinking of you" or "It's good to see you out." 

I have so desperately wanted to connect with other women who have lost school-aged children. Just as I wanted to go through the newborn phase with other women, I've wanted to explore grief with someone who was about the same place I was. I found some women who lost children a decade or more ago, and it felt like they just kept telling me it would get better. But that isn't what I needed to hear. Quite frankly, I don't want it to get better. Grieving so hard feels right and any changes in my grief are another loss. Now that I only cry a few times a day instead of 30 times a day, it's a loss. Being able to go to the grocery store on my own or cook dinner or do laundry, all of those achievements feel wrong. I want to reject anything to do with the regularity of life because it feels like figuring out how to live without my son, and I don't want to live without my son.

How did people who were grieving the same person respond to the death compared to you? What similarities and differences did you notice?

One night while my husband was at a meeting, I sat at the table with my three loud children. They were excited about the cheesy garlic bread I made. They wanted to grate mountains of cheese onto their spaghetti. They did not like the look of their apple and beet salad with walnuts. But they laughed. They hummed. Told jokes. They were just being themselves. I scowled at them. The things I used to enjoy about my kids are upsetting now. I get mad at them. I scowl. I don’t like fun. 

Mealtime used to be a joyful event. A few months before Riley went into the hospital while my husband was out of town, we spent an entire meal only singing to each other. “Would you please pass the cheese?” was a melodic request followed by: “Yes. I will pass the cheese, pass the cheese, PASS the cheese.” Think Bohemian Rhapsody. It was the best. Laughter is now grounds for disgust. Despite the talks my kids and I have had about them feeling sad on the inside even though they look happy on the outside, it’s hard to accept. All that laughter feels like a betrayal of the truth.

My husband, Riley’s stepdad, held our household together when I fell apart. He had to compartmentalize in order for our house to survive. At the same time, I didn't understand how he could do it. On his birthday, my husband shuffled the kids off to bed and I plowed my face into pillows and refused to speak. I transformed from Present-Buying Wife into Bitch Wife, angry that Husband had a birthday in the first place. Angry that his family sent birthday cards. Angry that he called them and laughed and joked about who-knows-what. I could still picture him jumping around the kitchen like one of the kids repeating, “It’s my birthday. It’s my birthday.” In between each line, I hear: Riley died. Riley died. Riley died. I have crazy days when I feel like him going to work and being able to go see friends at the pub is a betrayal of Riley's death. No one will grieve Riley the way that I grieve Riley. But I made a pact early on that I didn't want to lose my husband as well as my son. 

How did your private grieving relate to your public mourning?

I am not interested in holding myself back or denying my emotions. When I'm in public, I cry or shake uncontrollably. At the school’s holiday concert I sobbed for the entire show. When my younger son Carter had his glee concerts, I had to leave the room several times to catch my breath. I think much of my social anxiety is just not knowing who I might run into. When I spoke at the school project ceremony, I cried. When I handed out #TeamRiley bracelets to a bunch of 8 and 9 year olds, I cried. It's human. His death is fucking sad–how could I not cry?

Were there any personal or public rituals or structures that helped you in your grief?

We have a makeshift memorial that we visit on the trail we often hike. We take the kids and "go visit Riley." Sometimes, one of them will say, "I'm going to run ahead to talk to Riley." Seeing the kids thinking about Riley and feeling like we have a place that we can visit him feels right. 

How did your loss and your grief change you?

I believe in things that I otherwise would not believe as an intellectual and rational human. I get "Letters from Riley" every so often. They are little notes that just appear in my head out of nowhere. You can call them whatever you want, but I believe he sends me little messages. The first was: 

Dear Mom, 
I've been thinking a lot about Tabasco.
Love, Riley

Another was:

Dear Mom,
Don't let me dying be an excuse to lie around in bed all day.
Love, Riley

Another:

Dear Mom,
I miss Carter.
Love, Riley

Another:

Dear Mom,
I don't miss macaroni and cheese.
Love, Riley

Riley went into surgery scared, but hopeful. He looked forward to running, flying on airplanes without oxygen, and going to the mountains–something he could not do because of his low oxygenation. I like believing that he died still feeling hopeful for those things, and I imagine him running and running and running. I feel grateful that he died while being soothed by his mother, father, and two bonus parents and not in an operating room. He is no longer in pain, no longer suffering, no longer struggling. For this I am also grateful. Afterward, I noticed a vertical beam of light pressed against the wall near the closed blinds at the end of his bed. In that moment, I believe that his essence was that beam of light. And as a result, I talk to strips of light on the walls, often out loud, as if I'm talking to Riley, and I can hear his replies in my head. Why wouldn't I talk to him? And since I cannot see his physical body, I talk to the light. 

Suzanne Galante is the founder and editor in chief at Six Hens (http://www.sixhens.com), a literary magazine honoring life's defining moments. She holds an MFA in Writing from the University of San Francisco and a Journalism degree from Northeastern University. She has been writing as Mother in Chief since 2005 (http://www.motherinchief.com).


This post is part of Grief Landscapes, an evolving art project documenting the unique terrain of people’s grief. Participants share an experience with bereavement, and I then photograph an object that evokes the person who died, transforming it into an abstract landscape inspired by the story. I’m accepting submissions until June 15th, 2016. Learn more about the project, share widely, and submit your story.